Neurosurgeon Visit

We went and saw the neurosurgeon yesterday. For all of the anticipation over the last few weeks, we didn't find out a tremendous amount. First, he can't give us an official diagnosis until we have a CT scan. So, we'll have that in a month. The doctor's office will call us with the actual appointment time. After the CT, we'll go straight to the neurosurgeon's for another visit. At that visit, he wants us to bring some dates that would work for surgery. From the exam, he said it looks like Andrew's sagittal suture is fused. The sagittal suture is the one that runs from the middle of the head back. Because that suture is closed, his head can't expand from the sides, so it lengthens front to back. The soft spot on the top of his head is smaller than it should be, and the soft spot on the back of his head has closed completely already. The surgery would involve cutting two strips of bone along the suture to allow for the head to expand. He'll probably stay in the hospital for 4 days or so, with one or two of those in Intensive Care to monitor how well he reacts to the anesthesia. The doctor was wonderful and very knowledgeable. His name is Dr. Andrew Reisner, so he related very well to our Andrew. Here is his group's website. He's on the home page holding a little girl's hand. He's also the director of Neuro Trauma at Children's Healthcare, so I know we're in good hands. He said they've done hundreds of these surgeries, and once corrected, it won't cause him any further problems. We'll keep everyone posted with updates as they come!